The Inevitable Scream

Posted on by Esterina Anderson

2am this morning.

I’m taking deep breaths with my hand over my mouth—a long-established, almost automatic practice. My eyes, temples, and the space between them ache. As I write this, I can feel that same pressure building again. It hasn’t been that long since these small acts were even noticeable to me, and now they provide insight into what is happening. Chakra-wise, it’s the voice and wisdom center that feel in pain.

I thought back to one evening about a year ago on my therapist’s couch. When I described “The Scream,” she said, almost immediately and with empathy, “It’s because you had no voice.” Instantly, tears sprang to my eyes. With that sudden understanding—something unknown becoming obvious—my throat hurt. It made sense. It was clear to her, but new to me. I couldn’t wait to tell my husband, but when I tried to explain it later over the phone, it got lost in translation. It lost its potency, and I lost the motivation to explore it further.

The scream I speak of took place in mid-February 1994, just days before my 18th birthday, outside of the Patchogue courthouse on Long Island. The previous summer, on July 9th, was the first time police were involved in the domestic violence and abuse that had been present in my home since I was born, resulting in that February court date. I wanted justice. I wanted something to happen. But nothing did. Because I was still a minor, the case was moved to family court, and my father walked away without consequence.

I didn’t understand what was happening that day. As we left the courthouse, I asked my mother what was going on. At first, she said nothing. Then finally, she said, “Nothing is happening.” With each step toward the car, it began to sink in. Confusion turned to anger, and anger turned into something I couldn’t contain.

I stood behind the car. I didn’t want to get in. The car felt like the box I had lived in my whole life—hot, enclosed, inescapable. They urged me to get in, but I couldn’t. And then it came. A scream I didn’t know existed inside me—loud, uncontrolled, inhuman. I screamed again, and again, and again. They froze and watched me like I was something wild, and in that moment, I was.

When it stopped, I felt different. Not fixed—but released, even if only slightly. I got in the car, went home, and we never spoke about it again. But I never forgot it.

Years later, that scream came back. At first I didn’t understand it. It would happen in my car, at home, sometimes in the middle of the night. It felt like something building and building until it had no choice but to come out. I thought it was dramatic. I didn’t connect it to anything real. Hindsight is something else.

What I now understand is that my body was reacting to something it recognized as danger—something emotional, not physical. The same feelings of being trapped, unheard, and without control would surface in my adult life, especially in situations where I felt I had no voice. My body didn’t see the difference between then and now, so it screamed.

For a long time, I didn’t understand what was happening. I just knew that when it came, I couldn’t stop it. It felt like a complete loss of control, followed by an overwhelming release. Last summer, something shifted. After a particularly intense episode, I began to understand what was happening in my body—how trauma lives there, how it gets triggered, and how the mind and body respond even when the present moment isn’t actually dangerous. That understanding changed everything.

I haven’t screamed in many months now. Not because the past is gone, but because I can recognize what’s happening before it reaches that point. I can get somewhere safe. I can slow things down. I can give myself what I didn’t have then—a voice, space, and awareness.

This post doesn’t wrap up neatly. It doesn’t tie itself into a perfect message. It just is.

I woke up this morning with my hand over my mouth, my temples aching, and a memory resurfacing—reminding me of where that pain comes from. The scream felt inevitable then. Maybe it doesn’t have to be anymore.

Peace.

Thanks for taking the time to read. I’d love to hear your thoughts!

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A PTSD Triggered Morning

Posted on by Esterina Anderson

Morning of November 27th

Wide awake and pitch black. A quick look at the bedside clock reveals it’s only 4:40am. I still have over another hour to sleep.

My mind races with things I’m excited to do today. I don’t know how I could get them done, but I want to try to fit them in if at all possible. I would love to start the holiday baking. I have a scarf to finish and several more origami boxes for gifts to make. And definitely squeeze in a run. An appointment and work are the anchors of what I need to work around. I mentally strategize about how to make the fun stuff happen. Although I didn’t realize it at the time, looking back this crazy thought process was Clue #1 that I was anxious and trying to vet my energy in a positive way.

Then I remember it’s my husband Daren’s birthday! Maybe I should get up and make scones to surprise him with? I can do that, then maybe run before logging into work since I’m teleworking today. That would be a fine start to the day.

I forgo the attempt to go back to sleep and decide on birthday scones. Clue #2 that I wasn’t quite right should have been when I went into the bathroom for my Ayurvedic morning routine and didn’t quite screw a cap back on one of my oils before picking it up again… by the cap. Ugh, what a yucky mess.

I stumble downstairs in the dark, all set to make blueberry scones. The three cats are milling for breakfast and are so very underfoot. The sink is sort of full and the dishwasher needs to be emptied. I need to clear these things to bake—everything is in my way.

My heart starts to race. Clue #3. Things not going the way I expect. I take a deep breath and remind myself that nothing I am doing is truly necessary, has a deadline, and is only something I would like to do—not vital.

For a few minutes I feel calm and present as I put everything away, feed the cats, and rush over to open the blinds. Why am I rushing? Clue #4.

I also notice that last night we left a mess of pillows and blankets strewn all about the living room. Pet toys are everywhere. And there is cat puke to boot. I realize I’m rushing and that opening blinds can take place after I start to bake. Why do I need to keep reminding myself to slow down this morning? Clue #5.

I walk very slowly on purpose back to the kitchen and begin taking out the ingredients and supplies. I preheat the oven, start the coffee maker (how could I not have done that first thing? Clue #6), and begin assembling what I hope to be scones in a short 20 minutes or so.

Moments later my heart starts to race again. My breath is erratic. Clue #7.

Something is so wrong. But what?

Why, last Wednesday evening, did my son Tom snap at me when I asked him to keep the dog’s training collar on? I immediately get angry about this even though I didn’t at the time. The look of disgust on his face 10 minutes later when I asked him politely if something was wrong while I was in this same kitchen at this same counter, assembling the makings of a Thanksgiving dish.

“Like what?” I asked.

“Forget it, Ma! I’m taking the dog for a walk,” as he stormed out the door.

How dare he?

At the time I almost laughed it off. Immediately after the door slammed behind Tom, I asked my husband if I said anything wrong. He affirmed I had not in the very least. Hours later, while at his girlfriend’s house, Tom texted me to say he was sorry about snapping earlier and that he loves me. The whole episode was just not a big deal.

So why am I so upset this morning? Clue #8.

I start mixing the wet ingredients into the dry, being careful not to overmix. As I prepare the counter with a light dusting of flour before turning the dough onto the floured surface, I consider how much I cannot stand when someone accuses me of something I didn’t do and then gets mad at me for it.

Now my heart is really racing. I feel as if my life is at stake and I need to fight for it. Why am I even thinking about this now? Clue #9.

I continue to work, but my hands are shaking. I can’t concentrate. Clue #10.

I want to bring these things up with my son and husband. Unearth them. Find out what they were thinking. Clue #11.

There are two ways this story could go.

I could do just that… or I could remember that I have PTSD.

This morning, thankfully, I went with the latter.

In fact as soon as I came to terms with the very real fact that I have PTSD last summer it was an option at almost all moments when I had this feeling that something was just terribly wrong and at some point it started to feel like my life was at stake. My issue nowadays is that I always feel terrible when I miss the earlier clues. Sometimes I can catch them and breath or take a medication. But today I missed them all before I was fully triggered.

 

As I begin kneading the dough I thought more deeply about what I’m really, really feeling. I was likely triggered by Tom’s reaction simply by being in the kitchen in same way with the same light while it was dark outside. That trigger lead to thinking about my step-son months ago, but it really led all the way deep down into the child inside me that became frozen in a certain state 40+ years ago.

 

Being accused of something that wasn’t my fault, something I didn’t do, or something I couldn’t have possibly known was the norm. It often led to consequences where I was abused, sometimes very badly. My mom was often a bystander, not wanting to be abused herself. She would often look away or side with my father (the perpetrator). Someone standing by while I was unfairly accused hurt even more. Even though he didn’t mean it, Daren keeping his back turned or refusing to talk to me about the supposed wedding cake incident feels like a bystander not helping the child inside me in need.

 

Since this past summer I learned that long-term childhood abuse is particularly complex if it was at the hands of a caregiver, because as a child your actual survival is at stake. You need your caregivers to live. That terrified part of me has become frozen in time. I often handle situations like this and a handful of others that would have led to abuse in a similar manner. During the initial encounter I’m very strong. I act as if nothing is wrong, as I had to do as a child just to get through the episode. Crying wasn’t allowed, even while getting hit- in fact it made things worse. I learned to deal with an incident by being strong and doing whatever I need to do. The hurt, terror and anger always came later and still does until this day when an old wound is rubbed, some time has passed, and my body feels safe and I’m re-triggered. Which often enough strangely leads me to feel as if I’m in survival mode. My heart, my breath, the crazed thoughts. My lower brain’s alarm signals to me that I need to fight for my rights, get out, get even, I’m being wronged, etc.

 

We all have that lower brain (the reptilian one without higher rational thought-like a crocodile). Mine recognizes triggers that were necessary for survival long ago and all our lower brains possess the ability to shut down the executive functioning portion of the brain if survival really is at stake when we need to flight, flight or freeze. It’s how we are built. The problem with PTSD is that sometimes the danger is only perceived and not even real. If the person doesn’t catch it, they have an episode which isn’t pretty. When I’m already anxious before I’m triggered I’m far more likely to not notice.

 

While folding blueberries into the scone dough, my higher and lower brain were in conflict. The part that I innately identify as me (more or less the higher, rational thinking part of the brain) was telling myself I was alright, I’m only in my kitchen; totally safe- I am and will be ok.

 

This part of my physical symptoms of being triggered are where adrenaline has entirely flooded my body. I can feel it’s desperate need to be released. I start to boil with heat. I hyperventilate and often cry uncontrollably. The next few hours are always recovery. Sometimes this happens often – several days in a row. I’m told it’s normal as you are going through PTSD treatment to go through time periods like this. When a childhood trauma victim feel safe as an adult- however many years or decades later, the body begins healing itself through bringing up old cellular memories in order to rid the body of deep-rooted habits/reactions/etc that no longer serve it.

 

I put the scones in the oven and set the timer. I’m lost. What was I going to do next? Did I make the coffee yet? I’m dazed, I’m confused, I’m sad… I’m just overwhelmingly dysfunctional. Daren comes down. Today I can explain my full thought process. We hug. I cry. I can hardly pick up a cup without almost dropping it. The scones are ready. We enjoy them although I can’t finish even one.

 

Sounds crazy? Yes, I know. But overall, I’m feeling better day by day. I know I need to go through this to get over/past/through – however it’s best phrased “it”. I continue to be patient and greet whatever arises, being careful to not get suckered into false alarms. That’s the trickiest part.

But I’m OK. I’m enjoying the healing, one cell at a time.

 

Social Media Disclaimer:

Many people often ask me why I so freely share my troubles. I share because I’ve found shame for so long in not being perfect. I’ve felt for too long like damaged goods I’ve learned none of us could ever be perfect and to even try to entertain such a thing or put on that façade is a set up for failure and takes WAY too much energy. We all suffer and we can only gain strength with connection. So I’m living the change I’d like to see by normalizing what is after all very normal.

 

Thanks for taking the time to read. I’d love to hear your thoughts!

Please feel free to leave a comment or subscribe for future updates.

 

 

Living by a Compass, Not a Clock

Posted on by Esterina Anderson

Today I woke up feeling good. On 7/11/18, 2 months and 2 days ago, I had just one of the worst evenings of my life. The following few days were even more difficult. These last 2 months have been a journey that I realize is life-long and I’m in no rush to finish. I’m enjoying and embracing every step forward and every obstacle that prohibits steps forward, or that even sets me a few back. Obstacles and setbacks are really necessary learning experiences.

Today I’m in gratitude. I might not be in an hour, but for now I am and I’m incredibly grateful.

I could write for hours about how I got here (I promise I won’t). The biggest contributor was my childhood and the mal-adaptive strategies (albeit very normal) I developed early on to deal with life while my brain was forming. One of my newly favorite psychology writers Van Der Kolk calls it Developmental Traumatic Disorder (DTD). This diagnostic explanation is fairly new in the world of psychology. It didn’t quite make it to the DSM-5, which is the latest edition of the manual by which mental health clinicians diagnose and bill for disorders. For now, the closest diagnosis is PTSD, which DTD is a branch of. Particularly for me, for now it’s Delayed Onset, Complex PTSD. It turns out I’m just another statistic, and if someone were watching closely, everything that happened to me could have been predicted.

I’ve been through a gamut of emotions the past few months. Many before 7/11, but even more, and much more intensely since. Crazily, but also not surprisingly, this episode took place just 2 days and exactly 25 years after what was one of the most transformational days of my life at the time when I was 17. I’d written about it before in My Mom. It’s one of my trigger dates, something I don’t think I fully believed in until this summer. I didn’t consciously recognize the significance of how the date triggered me, but my body did. The Body Keeps the Score. It really does.

What I realized most profoundly this summer is that I have PTSD. I really do. Two and a half years ago I had my first panic attack. I was immediately diagnosed with Anxiety and Panic Disorder. Last summer the PTSD diagnosis was added. While I remember telling people about it, somehow I didn’t realize how important it was to my mental recovery to embrace and work on it. In fact, when the true awareness hit me like a ton of bricks just less than a week after 7/11 this year, I was surprised to realize that I’d been sharing and telling people about it prior to then. A few days ago I re-read something I added to my blog page in May, “About Me,” and it was there too! Why wasn’t I working on it?

I wasn’t working on my trauma and PTSD for many reasons. Because it wasn’t urgent and didn’t seem important. Because no one tells you that it’s important. In fact, no one can; it’s something you have to discover on your own when your body is ready. Also because I didn’t have the time or the lifestyle until now. That is why I’m in gratitude this morning. I’m moving in the slow lane and I love it.

From a young age I moved fast. I always had excessive energy. I never understood how anyone could sit at a meeting or in a class and not fidget. I was just always bursting out of my skin. Driving… I had to be in the fast lane. I was constantly assessing for traffic, changing lanes with the flow. Heart always racing. Breath always erratic. I was always, always, always looking for more efficient ways to do things. From driving to folding laundry to cleaning… to redesigning whole work groups and even departments at my job. I was good at it. It was a great outlet for my energy. I was efficient and I helped others to be as well. A good use of my talents. Or so I thought.

Now I’m living in the slow lane. I still have the habit of moving fast, but I catch myself at least 80% or so of the time when I realize that for no good reason my heart is in a lurch or my breath isn’t steady. I stop it and slow down. I manage my breath. I smell the roses. I ground myself in the present and it’s SO much better. I think about that quote about how nothing or everything is a miracle, and see things as beautiful. Even ugly things. I wish we could teach our children this from a young age. Instead we are programmed to “succeed,” to do more and faster, to have it all, to do it all. We are programmed to think we are a failure if we don’t meet this criteria. On paper, by this methodology, I was a huge success.

Take two driven people like my husband and myself, put them together, and what do you have? It’s debatable. 7 years ago I would have thought a match made in heaven. In fact, at our wedding we incorporated the Japanese term of kaizen (continuous improvement) into our vows. Ugh… how I cringe now.

I do believe in continuous improvement, but not in the way it was taught to me (faster, better, do more, etc.). I believe in the slow movement. That less is more. That slowing down and even stillness is where the magic of life lies. Take a look at the pets in our lives. They are content with doing less, watching the world outside the window for hours just as it is. Accepting us for who we are. Not caring about how we are dressed or what fancy letters come after our name. They are, in a sense, more human from a place of connection than we are. I have four pets. I didn’t even have time to pet them before. I would shoo them away when they came to climb on me when I collapsed on the couch after 16 hours of non-stop movement. We had to have our dog in daycare just to get exercise and go out because no one was home long enough to play with him or take him out. Picking him up and dropping him off was another burdened activity on the checklist. Why have pets, kids, a house (2 in our case), a garden, etc., when there was no time to put any love or life into any of it? It’s been a slow realization for me that none of this makes sense. That I was living by a clock and not a compass. It took even longer to do anything meaningful about it. I’m still on that journey and in no rush to any finish line. The unfolding is a beautiful experience that I’m embracing wildly.

I wrote a few paragraphs back that I could write for hours about how I got here. Everyone has their own journey, their own stories, their own level of awareness, and their own (hopefully) point in their life—more often than not in the second half of it—in which they proverbially “wake up.”

My own story started on March 1, 2012. At work I enrolled in a Franklin Covey industry-based class for The 7 Habits of Highly Effective People. It was a 2-day seminar that set the path of a new life for me. At the time I was recently remarried and my husband and I were just finishing up the renovations we worked on non-stop for 2 months in our new home. I felt SO alive during those renovations. I loved working on the house. We often stayed up until 1 or 2am in the morning on work nights and didn’t feel the least bit exhausted in the morning.

Once the renovations were finishing up, I started to feel trapped, bored, and useless—something I wasn’t accustomed to feeling. Since my husband and I moved in together with our kids the year before, I felt like I was mentally unraveling. The renovations were a pleasant distraction. I began going to a Bible study at the hospital where I work, which one of my vanpool mates hosted. I hung onto many of the teachings and words, learning new language to explain what I was feeling. The Covey class used similar language but explained it in a different way that opened me up in a special fashion. Three things I really connected with were the concept of a paradigm that we see the world through, that I make my own independent choices constantly, and that to feel in line with who you are, we should be living by a compass and not a clock. Wow. This was mind-blowing and life-changing for me.

Shortly after, I explored the Bible much more. Then I ran into a Bishop Spong book quite by accident (I honestly cannot remember which one). I was never religious, but grew up Catholic and felt like it was a sin to question anything that didn’t make sense. As soon as my mind took me to those questioning places, guilt kicked in and I pushed it away. The John Shelby Spong book provided the freedom to question what made no sense and shift the focus to something that did in a more mystical, metaphysical way where it all made sense. From there I found podcasts on the Centers for Spiritual Living to help time pass while having to drive to Bedford, MA quite often for work—2½ hours each direction. Those podcasts prompted me to read the ghastly large book by Ernest Holmes called The Science of Mind. The world was opening and unfolding in ways I could have never dreamed. From there, for some unknown reason, I started taking yoga classes, which spoke the same type of language. Then I would listen to Alan Watts during my lunch walks and long commutes. All different words, but the same beautiful, timeless messages that make sense.

Years later, in January 2016, I loved yoga and this way of thinking so much that I started yoga teacher training. My regular life with work, the kids, pets, blended family, commute, and constant rush was becoming unsustainable. Why was I adding a full weekend a month commitment to this training? I don’t know, but I just felt compelled.

For some reason I thought in yoga teacher training I would learn more about the poses, teaching, and the actual class. Instead, like the Franklin Covey class years before, it became a personal journey. I quickly decided that it was a necessity to meditate regularly. Once I started quieting my mind and relaxing regularly, I realized that is how a body should feel, and how I lived for the previous 40 years was anything but calm. It started to become unbearable to not feel calm. Combine that with what I now realize is a few PTSD triggers from work at the time, it’s absolutely no surprise that I had my first panic attack exactly when I did, and they escalated from there—completely out of control. My body was releasing 40 years’ worth of emotion that was bubbling just under the surface. The same energy that kept me moving, grooving, and successful was the same energy that was keeping me stressed and mentally unaware that I was damaging myself by not dealing with the trauma that has plagued my mind, body, and spirit.

The past two and a half years since have been transformational. A lot of bad and negative things arose, but more positive learning experiences than anything bad. You have to go through it to move through it. It sounds simple, but it’s much harder than it sounds. It wasn’t until now that I’ve given myself the time and opportunity to heal. But you have to make the time. Your life has to allow it. You have to slow down.

This past summer was rough. I spent hours upon hours writing and allowing myself to remember and experience the anguish of old memories. Many were the same memories that came up during what I now know as PTSD episodes, but I’d felt too ashamed, embarrassed, or dramatic to explore. In writing, crying, thinking, gardening, exercising, waking up in the middle of the night, reading, etc., I started to explore my triggers and where they came from. It made sense. I learned more about how the brain is wired and why I seemed to lose control at times. I logged and shared trigger dates with my family. I allowed myself to feel all that I’ve always pushed away and thought I moved past years ago. It was always there waiting for me to deal with it. I just didn’t slow down enough to hear it.

Today I feel good. Over coffee this morning I saw my husband petting one of the cats who was purring where he shouldn’t be (on a counter). When my husband moved his hand away to finish getting ready for work, our cat Gilmore bipped him on the hand—asking for more petting, which Daren provided. We are in a place where we have time to pet our cats. I am thankful I am in a job where if I woke up in the middle of the night and didn’t sleep for hours, the pressure of getting dressed and driving to the office with a smile is not there because I can telework and I’m part-time. I’m thankful for the mental health breakdown this summer. I spent so much time on the days I wasn’t working living like my pets. I napped in the middle of the day if I needed to. I only ate when I was hungry. If I felt like the sun was calling me, I read and wrote outside. If I felt the urge to move, I went for a walk, run, or bike ride. Listening to my body helped me to attune to what it’s telling me in other ways too. Our bodies are a walking, living, physical communication device. It’s a compass of that path we should be on.

This summer I also listened to The 7 Habits of Highly Effective People CDs that I was provided with from that class back in March of 2012. Listening to the late Stephen Covey’s voice felt like listening to an old friend with sound, sage, timeless advice. I also spent quite a bit of time doing those old exercises again. I created a mission statement, thought about my values and principles, my “rocks,” how I communicate with people, how I think, and how I live. I thought about the life that I want to program. My own talents. Not the talents the world has barked at me—like designing things bigger, better, and faster—but what I wanted to be when I was a kid with no restrictions and what that meant. The imprint I want to leave on the world.
These aren’t overnight answers. If I thought for a New York second that I know them right now, I’d be fooling myself. I’ll be working on them for the rest of my life. I’m trying diligently to listen to the compass. If we quiet ourselves enough, and ask our inner selves for advice, the most profound wisdom is all there, right within us. Our bodies know what we need. They keep the score.

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My dog Koji who teaches me all sorts of invaluable lessons without saying a word
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Bored at home after carpal tunnel surgery of my right hand this past Monday (9/10), I decided to try to open my right brain by painting with my left hand
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My left handed drawing depicting what is supposed to be a sunset

 

Thanks for taking the time to read. I’d love to hear your thoughts!

Please feel free to leave a comment or subscribe for future updates.

 

On Understanding Panic Disorder

Posted on by Esterina Anderson

I almost don’t know how to start this. Anxiety disorders are the most common mental illness in the U.S., affecting millions of adults every year.

I am one of those people who suffer. When I’m in panic, it’s almost as if a doppelgänger took over my body. So many people do not understand what happens and that the person has no control over how they feel. Stress and cortisol flood the body.

Last night I had a panic attack. I actually had several in the past week, and 4 or 5 just yesterday alone. What made my last two particularly long and painful is that other people were home and weren’t reacting compassionately. They live with me and don’t quite understand what I go through, how painful it is, and how little to no control I have over how I feel or can possibly react. I can empathize and understand that it can be scary to someone else—really I can. I don’t want to be in full-blown panic either, believe me—way more so than the people around me don’t want to see it.

A key driver is understanding. Panic disorder with panic attacks is not something that can be helped in the moment or have a lid put on it. What makes it all so much worse is when those around you judge you and believe mental health issues are something that can simply be controlled. I’m writing this because if my own household doesn’t quite understand what this is about, how can anyone else? I need to do my part in spreading awareness.

I didn’t know much about true anxiety either. Why should I? We throw the word around a lot. Many of us live with low-level anxiety constantly. As a society, we are mostly all anxious. Anxiety and panic disorder are a little different. Nervousness and anxiety can both cause similar symptoms, but normal nervousness—like before a big presentation or applying for a job—is tied to a real situation and passes. Panic disorder is not like that.

I’ve read a lot about anxiety in the past two years since I’ve been diagnosed. Stress is prevalent in our culture. A large part is due to technology and the constant bombardment of information. Also, the ability for others to reach into our lives at any moment—through social media, texting, email—creates a constant sense of urgency. When I was younger and we had a house phone attached to a wall, leaving work meant the day was done. No one was creating new demands through texts and emails late into the evening.

Now, something as simple as a phone notification at 9pm can cause our heart rate to increase and create a false sense of urgency. Whether it’s from a loved one or your boss, the body reacts as if something is wrong. For most people, that feeling fades quickly. For those of us with an anxiety disorder, it doesn’t go away—it escalates.

A panic attack can feel like your body suddenly believes it is in danger, even when nothing is actually happening. Your heart races, your breathing changes, your chest feels tight, and your body prepares to fight or run. Rational thinking goes offline. It is not the time to reason through it or try to explain it away.

With panic disorder, the body goes into full fight-or-flight mode without a real, present threat. It differs for everyone, but for me, I am often triggered by something external that was threatening in the past. Many times I cannot initially identify the trigger. It is almost impossible to do so when the brain is flooded and executive functioning shuts down.

I want to feel normal and not panic more than anything. Riding it out, medicine, and therapy are helpful, but it took years for my body to become this dysregulated. It likely will not go away overnight.

I can tell you what makes it worse for me:

Being with someone during a panic attack who doesn’t understand and becomes annoyed or frustrated. I can’t be helped in that moment. Someone in my face trying to rationalize it feels condescending. Being ignored feels humiliating and similar to abandonment. I’m already overwhelmed—those reactions only intensify it.

Another difficult experience is trying to hide it so as not to scare others. That creates another layer of pressure. I’ve had panic attacks on airplanes, in restaurants, at work, while driving, while getting ready for bed, and even when waking up. When people pretend nothing is happening, it makes me feel like something is wrong with me—like I need to be hidden.

And then there is the shame. The feeling that you need to hide such a significant part of your experience from others. Our society does not always respond kindly to mental health struggles. Before experiencing this myself, I also believed it was something that could be controlled. Last summer I spent a full month in an Intensive Outpatient Program, but I was afraid to tell people why I was on leave. If I felt that way, I’m sure others do too.

May is Mental Health Awareness Month. If you don’t struggle with mental health (and that’s wonderful), it’s very likely you know someone who does—you just may not realize it. Let’s do our part to bring awareness and approach one another with compassion instead of judgment.

We are all human. Let’s treat one another as such.

Peace.

Anxiety and Depression Association of America https://adaa.org/about-adaa/press-room/facts-statistics#
We Need to Talk. Our Society Has an Issue With Anxiety and Mental Health. https://futurism.com/we-need-to-talk-our-society-has-an-issue-with-anxiety-and-mental-health/amp/
How to Handle Someone Else’s Anxiety or Panic Attacks https://medium.com/@gtinari/how-to-handle-someone-elses-anxiety-or-panic-attacks-51ee63f5c23b
How to Help Someone Having a Panic Attack https://m.wikihow.com/Help-Someone-Having-a-Panic-Attack
Mental Health America http://www.mentalhealthamerica.net/may

https://dailypost.wordpress.com/prompts/doppelganger/

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On Abuse

Posted on by Esterina Anderson

“Don’t be ashamed of your story. It will inspire others” ~Blake Pierce 

Division Bell

Wikipedia defines a division bell as: A division bell is a bell rung in or around a parliament to signal a division and thus call all members of the chamber so affected to vote in it.

Hence –it’s a call to action.

It’s also an album by Pink Floyd that was released in 1994. Pink Floyd was one of my favorite groups in high school. In 1994 when this album was released I was a senior in high school just about to graduate. I heard it right after I made my decision to join to military once I graduated. It felt like a time of hope. The album spoke to me.

It’s time for me to do my part in a call to action against domestic violence. I grew up as a child in a household with domestic violence. My father was the perpetrator, my mother, brothers, and myself the victims. More than anyone though, even my family would agree, for some reason I bore the brunt of the violence.

Like a fish doesn’t know it’s in water, I didn’t know I was in a bad situation. I didn’t realize my father was an alcoholic. I knew he was a gambler. I knew what happened in our house wasn’t right, but I also thought it could be worse and the people who experienced something worse were really the victims. There were so many people in my life who saw the signs and bruises and heard our excuses. Teachers, friends, friend’s parents, our own extended family, our neighbors. No one dared ask past the excuse. They all suspected, but they dropped it there. I always thought – they should suspect more, poke a hole in my ridiculous story so I have a reason to elaborate. Since they didn’t, I assumed my parents were right and it must not be too bad.

Everything went. Things broke. Things were thrown at us – food, boiling water, household objects. Our heads and bodies made holes in walls and doors. I was thrown across the room, beaten with a chair, punched, kicked… you name it. Called names, told I was stupid, lazy, a whore, an idiot, etc. Looking back it’s a miracle I made it out ok.

I was also told not to cry – by both of my parents. Neither could stand anyone yelling back or crying. I learned so early on to bury my feelings and cry only under the cloak of darkness.

I knew I wanted out of that house, probably from the age of a toddler. My mother once said to me she couldn’t leave my father because she didn’t finish high school and couldn’t take care of us. It was my life’s mission as a kid to finish school and get an education so I could take care of myself. I didn’t want to be like her and put anyone else into the situation I was in.

It wasn’t until about a year after I left my house & was in the military that I realized anything was different about me. I overreacted far more than anyone else to other people’s anger. I jumped when asked to do something and did it better than anyone else. The only good that probably came out of my growing up situation is that it made me a good solider, a good employee, one who aims to please. But other people’s anger really got to me. I went to see a counselor through the EAP program once my ship was on land. She gave me a book about co-dependence and didn’t think I needed to go back. It was no help at all to me.

When I got pregnant with Tommy I was determined to be a different kind of parent. I read every book I could get my hands on about parenting, which was pretty limited 21 years ago – it wasn’t like I had Amazon or all the time in the world to shop while I was active duty. I think the books served me well. John didn’t read anything and was quick to listen to me. We were on the same page as parents – loving, stern, caring, rules, and fun. Once I had Tommy and I was a parent myself, I started to realize how it feels to care for and love another little human so much. It really started to bother me thinking about the way I grew up. I just didn’t understand. For about a year I think I cried and journaled EVERY SINGLE day. John was kind and patient. He was more angry at my parents than I was. Again I went to counseling through the EAP, and again I found it to be a waste of time.

One day about a year of absolute post suffering, in the middle of writing – something just clicked inside me. It was like something you read about in books or see in the movies. All of a sudden my sadness was just lifted. It wasn’t replaced by bliss and I wasn’t overly joyed; but I felt a sense of letting go of the past. I suddenly realized what John meant when he said there is nothing you can do about it anymore. I think I just put the pen down and stopped shedding tears. I was just done crying about the past. I was only 22 at the time.

For the most part since then I’ve been able to talk about my experience without getting swept away by it. When I was 30 my mom passed away and her boss asked our family if we would write a little something about her life. I wrote this story that I shared on the 10 year anniversary of her passing on my blog page: https://esterinaanderson.com/tag/my-mom/.

At the time there was nowhere to post it. I emailed it to a bunch of my family and friends. Everyone gathered around & supported me. It was the first time I was public with what happened in my house. I hit send and was kind of frightened by the reaction I might get. I had always felt ashamed and broken by the situation – as if it made me different from everyone else and less of a person. But the love and support I received made that feeling disappear. It felt good to share. I felt light.

For the next 10 years I only talked about it when it seemed relevant (super rarely). It wasn’t until I went to a Yocovery class last March that I realized I was still very much affected by what happened to me. Yocovery is a special program at my yoga studio where addicts and family members of addicts go weekly to share their stories and do a little yoga. I was curious about what it was one Friday evening, so I drove over and joined the class. Everyone started sharing their stories. When it came to be my turn and I started talking, I was surprised to get choked up and then start crying. Wow – it did still bother me. Over the next few months I started to read about the affects of child abuse on adults. I was a classic case. Anxiety, anger, rage, guilt, shame, emotional numbing, dissociation. On the outside I’m very normal and well adjusted, but I hid a lot. And I hid it so well I was no longer aware it was even there.

In December I became aware of a group called Exhale to Inhale (ETI). ETI. is an organization that supports victims of domestic violence and sexual assault through the teaching of yoga. I joined the group and will soon be taking trauma teacher training so I can volunteer my time at shelters and safe houses. In the month of April the organization asked members to hold donations based classes through their own events and at their home yoga studios. I wanted to be a part of that. I emailed my beautiful point of contact at my home studio and got it registered for a volunteer class on Sat 4/15/17 http://www.yogasouthington.com/news-and-events/. I may also host a personal event at the house in Branford on 3/31. Stay tuned.

As strong as I feel, while researching some quotes, pictures and facts to incorporate into this class; I had to stop, cry and feel. Even 23 years after I have left the house, the experiences sit so deeply within in me until today. As a child I had nowhere to go, I didn’t even really know I was in harms way. In school we learned when to tell, but my parents would tell me that is for other people, not us – don’t waste their time. And I believed them.

I just still wanted out of that house. Music through my growing up helped me to escape and deal. Be normal. Sing in the car. Have something fun to connect to. Dance in my room with the door closed. Pink Floyd was one of those music groups for me. Those last few weeks in high school when the Division Bell came out, the end was in sight. The songs on that album mean so much to me. They can be relevant for so many topics. In my room while falling asleep – those songs… the lyrics and instruments were about the rise and fall of innocence before and after abuse. “On the Turning Away” from Momentary Lapse of Reason spoke to me about people who kind of knew but turned away. And then the escape. The ringing of the division bell at the end of that album in the song “High Hopes” as it faded away, sounded to me at the time like the bell toll that was my escape. Any bells I heard after that, especially in my early days of boot camp and in the military were the sound of justice for me. I hope to make that album in some way part of the theme for the karma class to raise money for ETI. The ringing of the Division Bell is a call to action to vote on something and bring justice. It’s time to do something about domestic violence.

Also in reading about the topic of child abuse I had to shake a bit in disgust. Sometimes as a society we take identifying “abuse” too far. Feeling angry, yelling at a kid every once in a while when they actually did something disrespectful, not looking up for the 5th time when a child shows you something and pretending it’s the best thing you ever saw while you are trying to finish something for work, taking some time for yourself and not attending every last little league game is NOT abuse. I couldn’t believe the things I was reading. It’s not even in the same league. Doing these things repetitively could be – absolutely… But children who now feel like they are being neglected and abused by working parents because they only help with their homework 50% of the time is not neglect. I understand why people tune out and don’t pay attention to so many allegations.

There is real abuse taking place. It can be hard to weed through the garbage of allegations, but those who know about it or have experience just can tell. There is a true sense of hopelessness, loss of control, and fear in victims. ETI’s two platforms of Intimate Partner violence and sexual assault help survivors to feel empowered, to feel safe, to help themselves, and to connect with the spirit inside of them that knows the right thing to do.

People are surprised I don’t hate my father. I do love him. I can’t be around him for long. I feel kind of bad for him. He has no real friends. He is still an alcoholic. He hangs with the wrong crowd and does the wrong things. When you talk to him he lives in the past and will still talk about my mom and how she left him, never understanding his part in it. He is still quick to blow up. Has been in jail a few times. He is loving. He is generous with his money. He has some really insightful, intelligent things to say sometimes. People that don’t know him who tell me that my father is a good man and nice company don’t know any better. I liken it to what my brother Mario once said recently about the type of people who support certain politics – if you say you like pops you just don’t know any better; and there is no way I can explain it to you because you haven’t experienced the dark side.

We all come from different experiences. Don’t judge, but do give and command respect back – Always. Act in love, but don’t be pushed around. Listen to your gut if something feels off and stand up for what is right. Push a little harder if you are talking to someone you suspect is having any of these experiences. They likely won’t tell you the first time you ask, but once or twice more may be just the little barrier breaker that can save them.

Thanks for taking the time to read. I’d love to hear your thoughts!

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On the passage of time

Posted on by Esterina Anderson

It still hurts after 10 years. The same exact pain at times. The same heart-wrenching squeeze that comes in waves while I’m experiencing grief. It feels like my heart is being rung out.

The first time I felt this so strongly was around this time of year 11 years ago when my mom was diagnosed with lung cancer. She died 10 years and 2 months ago. She was only 49. October 25th would have been her 60th birthday. My grandmother, who I was even closer with, passed away just 11 months later—also from lung cancer. She would have been 89 this year on November 21.

I miss them. Tonight, I’m especially missing them.

Them. Because they passed away so close together, we often refer to them as “them.” I don’t think about this often, but tonight I’m mourning and it’s on my mind. I was crying and having a hard time breathing in bed, so I got up and decided to pour it out—onto a keyboard instead of paper.

People who have lost someone close understand how grief can capture you by surprise. How it moves through your body. How, in those moments, it can feel like it will never let go.

They may also understand the strange comfort that can come when you feel the presence of the people you’ve lost. When I’m inconsolable, I feel them. Both of them. Always together, always comforting. I don’t know if it’s memory, energy, or something beyond what we understand—but I’m certain something about them helps me get through it.

Tonight I found myself thinking about who “we” are—the small group of people who still hold them together like this.

My brothers. My aunt. They understand immediately. I can tell them I had a dream, or that I’m having a hard night, and they just get it.

Then there’s John, my ex-husband. He was part of my life and my family when we were young, when my parents were still together. He knew them. He understood the dynamic—especially between my mom and grandmother. They were opposites. They annoyed each other, complained about each other, but loved each other deeply.

I remember one night soon after my grandmother passed. I was hysterically crying, and John said, “I bet when your mom saw grandma in the afterlife she said to her ‘So soon?’”— I stopped crying and started laughing. I still laugh about it today. It was exactly what she would have said.

I don’t talk to John much anymore, but I know if I needed to talk about them, he’d understand.

My father comes to mind too. He lives a bit in his own world, but he has moments where he reflects on them. Even though my parents were divorced, he’ll speak fondly of my mom and recall memories with my grandmother. Sometimes those conversations can shift in ways I don’t want them to, but the connection is still there.

My uncle. Maybe my kids, in a different way—but they didn’t fully know them like we did.

And that’s what hit me tonight.

How few people are left who truly knew them the way I did.

It made me think about time.

Thomas was supposed to come home this weekend. I had his room ready, stocked with his favorite foods. I was so excited. But work got in the way, and he couldn’t make it. I know I should just feel grateful he’s healthy and doing well—but I’m still sad.

Gabby is in her last year of high school. Soon she won’t be home every day either. Then there will be partners, new families, new traditions. Holidays will shift.

Up until now, I’ve had them for everything. Every holiday—big and small. I made a big deal out of all of it. Valentine’s Day, St. Patrick’s Day, Halloween—especially fall. Baking, decorating, pumpkin picking.

And now I can feel that chapter starting to close.

I always knew this would happen. I understood it intellectually. But tonight, I feel it.

My grandmother used to tell me to enjoy this time. To relax and take it in. I didn’t fully understand then.

I do now.

And I’ll probably understand it even more deeply 20 years from now.

We think we understand things before we actually do. We don’t.

We grow older. Our kids grow up. People leave our lives in different ways. Nothing stays the same.

The things we take for granted won’t always be here.

The world is impermanent.

Why do we think we can hold onto anything?

Maybe the real wisdom is understanding that change is inevitable—and that sadness has a place alongside happiness.

And maybe peace comes when we stop fighting that.

Time has given me space between moments of grief, but it hasn’t erased it.

Time has given me older children, but I don’t love them any less—or feel their distance any easier.

Time has given me more understanding, but often only after the moment has passed.

And time will keep moving.

Maybe this is a little too deep for some. Tonight, I feel deep.

I’m sad that this chapter of raising my kids is shifting.

And mostly, I just really miss my mom and grandma.

So tonight, before I try to sleep, I’ll think of John’s comment—

“So soon?”

And I’ll let myself smile.

Peace.

Thanks for taking the time to read. I’d love to hear your thoughts!

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Lexapro 100 day journal

Posted on by Esterina Anderson

Wow… 100 days. I went to see my primary care provider this afternoon for a follow-up on my anxiety and refill on my SSRI. I noted to myself that I have not journaled in a long time about my experience with Lexapro and came home to do so. I put the date I started and today’s date into Excel to see how many days it’s been – since I completely lost count; and to my utter surprise it’s 100 days exactly today. I feel like things are under control. I get anxious occasionally and I did have a panic attack last Wednesday at work. But the last time before that I had a panic attack was 5 weeks prior to then, but it was an incredibly stressful morning. As I told my provider this afternoon, I almost need to feel slightly anxious every so often because it’s my body’s trigger to slow down. If I went up any more on my dose I might not feel anxious at all and push myself too far. I’m in a good place.

And slow down I have! I am smelling the roses. I catch myself unnecessarily trying t o beat the clock for no good reason and I stop to consciously appreciate the present moment, no matter how unpleasant (except for traffic… I have NOT mastered feeling ok with the present in traffic). I am on my back deck. I can hear the trees blowing in the wind. I am not taking appreciating life for granted. I hope I always feel this way. I’m going to try to make an effort because life is better slower and in gratitude. I spent the day weeding the garden with my feet in the dirt. I thought about weeds and good and evil & cleaning/purging and how we need to do that with our minds by meditating reguarly. You can’t weed on occasion and expect weeds will not grow. You can’t clean every so often and think your home will not get dirty. As above so below – you cannot meditate every once in a while and expect to walk around with a clear head and zen outlook.

I loved the journey since I started medication. Someone told me to journal about it and I did. I was so afraid to start my medication. I kept the meds a few days before I began and read about it online obsessively. I was afraid of not feeling like myself. A girl wrote about how she had been on Lexapro for a year. She was artsy and creative and had incredible mood swings before she started the drug. She said she drew and painted so much more passionately before she started and now wondered if she should go off and be her real self again. That scared me. But the 5-10% of people or so who had good things to say, and didn’t have a nightmare of an experience said they were glad to actually feel like their old self again. That is what I wanted. I like being passionate & creative and all that jazz, but I did want to feel like myself. What would be the worse thing? It would be a nightmare and I’d go off and be in the same place I was? My biggest fear was losing myself, but actually – I found myself again. And I’m all the better for it.

March 16, 2016; 10:16pm

And here goes 

About to take my first dose of lexapro. I may be miserable the next few days and worse off. I’m officially someone diagnosed with a mental health condition and I need meds. I pray it works because I so desperately want to feel better. This may be the last of the real Esterina. I love myself. I’m sorry I lost it. I will be better. And here goes…

March 18, 2016; 5:44pm 

Lexapro – Day 2

I am a person who is in touch with themselves. Deeply. I can already feel a difference. This morning when I woke up, it was the first time I woke up and didn’t have the sense of impending doom looming over me in a long time. It was amazing! But I know it’s not working yet because after a few minutes of lying in bed I started my normal anxiety. Only this time it felt different. I was short of breath, but somehow it wasn’t causing pain in my head. It was like it was cut off from my head or something. Then I read a text from Daren that he sent last night. I could hardly see it. The words and font looked kind of different, smaller if anything and a little sharper. I went down to the kitchen and prepared a fresh juice. I went back upstairs to reply to Daren’s texts. It wasn’t until he started making rigmarole plans with different pick-ups and hockey bags and complicated collaboration that the anxiety really started. Only it didn’t even come close to a panic attack. 

Today at work I was able to focus. Focus on one thing at a time. Not as well as I’d like but I was SO SO SO productive. It was crazy! I had energy I hadn’t had in years. Is this what drugs really do? No wonder these are prescription drugs. I almost want to up my dose to the 10 I’m not supposed to start until at least Sunday, but I’ll hold off. 

Driving home felt good. Usually I’m numb and kind of miserable. I wouldn’t go as far as saying that I was happy, but I was pretty ‘unmiserable’. 

I laughed like I did when I was younger twice in the past two days. Once about an hour after I took my first pill. I immediately felt a sense of chill about 5-10 minutes later. I did have a few margaritas with Gretchen and Lucy earlier in the evening. I know I’m not supposed to drink and take this, but I didn’t want to say no to hanging with them, especially while Daren was away and I haven’t seen them in so long. And I was suffering SO much with anxiety I didn’t want to wait even another day until I started the journey. So I took it that night. I felt a little chill as I drifted off into bed. I thought back to the day and remembered a funny incident at work. Haha!!! I couldn’t stop laughing. It was like when I was a kid or teenager before I got married and had kids… when I’d laugh all the time. Then yesterday the same thing happened in a meeting. It was a construction meeting and one of the police officers was describing an area that someone requested we do construction in. He was describing the half wall they were asking for and the reason being he said was… he didn’t know the medical term – but it was to give the patients a “shot in the buttocks”. OMG, I started laughing but stopped. I was holding back – I mean this is a professional meeting & all right? I’d heard this shot in the butt story before. Then when someone else was referring to it a few minutes later and he said “to give these shots in the butt” I started laughing again. And like when I was young. I knew it was inappropriate but I was giggling uncontrollably anyway. I couldn’t stop and it was almost embarrassing. Everyone looked at me when I really busted up. With tears streaming down my face. I said “I’m so sorry I’m laughing about this like a 5 year old”. And they all started laughing too. It felt so good. It felt like me raw. What’s funny is that it is me raw. I guess that is what it feels like to have my brain more in balance. 

I NEVER really time off from work. But over the past year or two I’ve probably taken between 6-8 mental health days with some other excuse. I always felt guilty as if I was cheating the system or something. I do it so nicely too. I make sure my work is done, my meetings are covered, I often get online & work throughout the day and answer questions. But overall I felt guilty. Truth is though, I do have a mental health condition and needed those mental health days. My reactions and feelings aren’t normal. I truly am suffering. It took having my first panic attack to realize how unstable I felt. While I don’t treasure them, I do in some way for getting me to realize I really was at a breaking point and needed help. I need help. It feels good to say that. And as long as this medication keeps improving and there are little to no (and fingers crossed for no) side effects then I’m SO happy I’m taking the steps to feel mentally healthy again. I cried coming home from the doctor when the med was prescribed. I felt like a loser. Now I don’t. I read somewhere where someone wrote coming out with a mental health disorder to other people felt worse than coming out of the closet. I felt like I could sympathize. I stared at the bottle. I read the instructions for a medicine the first time ever. I read everything I could get my hands on online about Lexapro. I was scared. When I finally made the decision to start taking it I was kind of excited and not scared anymore. I’m glad I waited the time out because now it feels right. Fingers crossed it’s only on the up & up from here. I want to be me again. 

March 21, 2016; 5:35am 

Lexapro – Day 5

Tired is all I can say. I have no energy. Saturday morning I woke up in full on Fight or Flight mode, only my thoughts were rational and I didn’t try to figure out what was the matter with or try to talk to Daren about all that is wrong in our lives & the world. It was just obvious that my body was reacting to absolutely nothing and I had to let it ride out. My mind didn’t follow it. It was nice, but unsettling. I can’t believe the medication would work so quickly. Saturday late afternoon when I went to take a shower, about 2 minutes into it I was hit a giant wave of exhaustion. Crazy exhausted. I was worried I wouldn’t be able to make it out of the shower safely. I did though. Daren came up and made sure I was able to get dressed. Then I went downstairs to the couch and kind of didn’t move most of the night. I got up for about 15 min to eat dinner, but had to lay back down. I slept for about 2 hours before dinner. Then again through most of the movie we watched. Sat night I know I looked at the clock before I fell into a deep sleep in bed, and it was 10:50. I woke up at 7:50, a full 9 hours later! But I was still tired. Saturday evening I switched from 5mg to 10mg. I was expecting to wake up with some wooziness and nausea, but didn’t. I was just super lethargic.

I forced myself out of bed and downstairs for some green tea. Stupidly Daren and I started our quarterly detox too. Probably a bad idea to be detoxing and starting a new medication. I started to gain some energy around noon. I made all the dinners for the week and cleaned up the kitchen & house a bit. Then I took Koji on a very mild 2 mile walk. But when I came home I was exhausted again. I went to take a shower (a very quick one because no one was home and I was afraid I’d fall asleep in there). Then I went to the couch. I couldn’t really fall asleep and I had no motivation to do anything. I had a mini panic attack. I’m not even sure why. I was incredibly depressed and crying on the couch. I was thinking about putting real clothes on today to go to work (no yoga pants) and it just made me so sad. I felt like I couldn’t deal with life. At that time I felt pangs of anxiety, but nothing fight or flight like within me. It was more like depression to be honest. No beating heart or doom & gloom thoughts. I got up to eat and right back to the couch. Until bed. I slept like a log. I had a hard time getting up for work today, but here I am.

 I feel drugged up. I really do. My motor skills are slower than usual. I’m SO tired. I can’t say enough about how little energy I have. And I’m really hungry. Don’t know if it’s the meds or the detox, but just hungry. I hope this wears away. I’m having a hard time caring about anything, especially work. I hope this balances out. Good vibes & lots of love.

March 25, 2016; 5:40am

Lexapro – Day 9

I’ve been SO depressed. I had no energy the past few days. I have been FORCING myself to walk. I drank pink wine & had chocolate last night. I had such forceful cravings. I should be getting my period so that might be it too. Plus I have heard Lex can make your anxiety and depression a little worse. I’ve felt my body in fight or flight a LOT, but my mind has not always taken me there. It has a few times. It’s been a rough few days since I’ve last written. 

Today I’m feeling great so far. I’ve only been up a for a little bit though. I got up & stretched and I put on a mask and gave myself a mani & pedi. I feel good. I feel solid. I still feel anxiousness in my head, but I just feel happy. I want to stay here (as I know everyone does). I NEED to work peace and meditation into my day everyday. It helps. I feel good. Namaste.

March 28, 2016; 12:24pm

Lexapro – Day 12

I had an absolutely terrible weekend at first. I mean terrible. I felt great on Friday. Like my old self. I was productive at work as I was the Friday before. I had a beer Friday night at the Wolfpack game and felt ok for a while. I started feeling a little depressed and by the time we got home I wanted to kill someone. I was so anxious about our ridiculous lives. None of the kids were supposed to be with us, but 3 of them suddenly were. I fell asleep right away but woke up to Kieran taking a shower at 12:15 in the morning. His mother left his belongings behind my car earlier that evening, and then Gabby ran them over while we weren’t home when she borrowed my car. She had to have the neighbors come over and help bail the crap out from under the car. Once I woke up and couldn’t fall back to sleep my blood started to boil and my anxiety kicked in. I lost it. I had a panic attack. The next morning on the couch I had another. Overall I’m not really feeling better yet. Today at work I haven’t really done a thing this morning. I’m so completely unmotivated. I know that doctors sometimes prescribe Xanax or something for breakthrough panic until the SSRI starts to kick in. I’m in a weird place. I have my fingers crossed this works. Every passing day I hope I’m one day closer. I did have the energy to get up & do some yoga stretching this morning.

 I know I sound a little rambly. I can’t wait to have motivation again. I did have it on Friday. Today I’m moving in slow motion. I was better this morning. I even did my 5 minutes of meditation that I always intend to do. I did it on Friday too. I really did give me a good sense of peace and inner stillness. Just now I’m SO tired. I’m tired. I’m not doing anything useful for the world. I don’t know what to say. I want to feel better. I just want to feel better. I really do.

March 30, 2016; 5:32am

Lexapro – Day 14

One thing I have been forgetting to mention is the very realistic dreams. People seem to use the word vivid but to me they just seem real. Like it’s real life and I wake up confused about whether or not something actually happened.

One of the things that recently happened to me last Tuesday is that several of my pills went down the sink. I ordered a pill box so that wouldn’t happen. It had 4.5 stars on Amazon so I chose it. It came on Friday (I think… maybe Saturday?) and I’ve been using it ever since. I’m not completely impressed with it. I just thought it would be easier than twisting off that terrible cap every time. Then last night I dreamt of this pill box. The days of the week wouldn’t close. The pills were falling out all in my make-up bag. I thought to myself that I needed to write a bad review and in my mind I thought as a consolidation the company would be mailing me a new one. I wasn’t going to get another one, I was just going to put the pills in a plastic bag instead. Vivid dreams. Realistic really.

April 1, 2016; 5:21am

Lexapro – Day 16

Yesterday was the first day I felt good all day. I think waking up & doing yoga first thing had something to do with it. I’ve also been meditating every morning at work for 5 minutes before starting the day. I’ve been opening the the window and looking out. Hearing the sounds of West Haven waking up. Feeling the cool morning air. Even the day it was raining. It was nice. Today I am in Newington. There is no window. I will try to meditate anyway at 8:15 when morning report starts and I know no one will bother me. 

Yesterday I felt kind of normal or what I imagine other people feel as normal. I caught myself catching my breath a few times and taking deep sighs, but I didn’t try to follow my body to why I felt stressed and just kept saying to myself that I shouldn’t water the weeds (of thoughts). It helped yesterday. It doesn’t always. Hopefully it’s the lex and then hopefully I can remap my brain to do that all the time.

This morning was the first time in 2 weeks that I woke up and didn’t have stress coursing through my veins with my heart beating. I’m trying not to think too much about it because it can go any second, AND thinking about it causes more stress usually. Please God/Universe/Almighty…. I need a clear mind. Peace. Tranquility.

April 4, 2016; 5:40pm

Lexapro – Day 19

Today I feel really good. Saturday I felt overall nothing. Not depressed. Not happy. Just nothing. Unmotivated too. I kind of did almost nothing. I did change out my summer and winter clothes though. Not having the feeling of being too attached to doing anything else or the outcome helped me to just concentrate on what I was doing and do it well. Time flew by. It was kind of nice and it felt nice to look back and see the progress I made with the clothes change. Something simple and it made me feel accomplished. Then for some reason on the way down to Shannon’s wine party later that afternoon, listening to music I perked up. I perked up so much I was singing to the music. It felt nice. After that I went out with Mirta and Elizabeth. We went to J. Timothy’s. I was kind of mellow. I feel like I’m losing my mind sometimes. I feel duller somehow.

Yesterday I woke up pretty motivated. We slept in until after 9 I think. A good night’s sleep felt really nice. I didn’t do much of anything yesterday at all. I made a few foods in the morning to prep for the week. I took my time. Again not being attached to an outcome feels nice. Then I touched up all the white trim around the house. Sometime in the morning while cooking, most of us were at home but all split up doing various things around the house. I was suddenly incredibly motivated to talk to Kieran and Devin about odd blended family situation. What I’m forgetting to write is that on Friday right after I wrote in here Daren copied me on an email to his ex. She was vague about Keiran’s plans so I asked to clarify something. Well…. she went nuts and spouted back that I’m the step-parent and there is no reason I should communicate about her kids plans. I just wrote back again and said I’d like to know what is going on in my own house.

One of the main things I’m learning about myself is that a situation doesn’t bother me as it’s happening; it’s usually down the road hours or a few days later that I’m affected. I think it was because it was how I coped with domestic violence as I was growing up. At the time of an unpleasant experience I am strong and normal. Only later do I allow myself to process. So, as I was happily cooking Sunday morning, I started to process what felt like an unnecessary attack on Friday. I was in a good mood and just felt like I could talk to the kids. Daren was supposed to come home sooner than I thought with Devin so I was kind of waiting for them. But a lot of time passed and I didn’t have the opportunity when I was ready to talk it so I missed it. I really wanted to air things out though, so I thought I would write down everything I wanted to talk to them about and chat together after dinner. Then I thought the kids might get upset and misconstrue my words, so I thought I’d send an email ahead of time so there were no misinterpretations. I thought about what I might write for hours while I cooked and painted. I finally sat down and the thoughts were just pouring out of me. I imagined their mom one day reading it in case they got upset and forwarded it to her, so I was very PC.

 When I was finished, I felt spent. I sent it to Daren first for his advice. I had no idea how he would react. I asked him to read it and disappeared to take a shower. I felt a huge release and a little panicky. I think a few weeks ago before the lexapro I might have had a panic attack. But I didn’t. I did feel shaky though. Daren came upstairs after my shower to tell me that it was beautiful and that I should sent it right away. I did. Then he told the boys to read it. Kieran did, Devin had some kind of mishap with receiving it. We kind of openly talked about a few things after dinner after Gabby left the table. Then I left Daren and Kieran to talk while I took Koji out for a walk. I know I left the door open for them to talk about some stuff more openly than likely they ever have since I’ve known them at least.

 After that I was kind of numbish again. It’s nice to be numb. I thought I would be upset not feeling so hard, but it’s kind of peaceful. This morning I woke up with more energy than I’ve had in long time. I did about 15 minutes of yoga, no meditation. Had coffee. Actually listened to music again & sang! And I’ve been moderately motivated at work. Not as much as I normally am, but much more than last week. That’s how I am! Thanks for listening.

April 7, 2016; 5:56pm

Lexapro – Day 22

I’m so so so tired of not feeling like myself. I’m tired of feeling blah and uninspired. I’ve been escaping with reading. I don’t want to deal with my bullshit life. I don’t know what to do anymore.

I’m not doing well. I can’t say this medication is working. I had no control over my mind today or my emotions. What can I say?

April 22, 2016; 5:21am

Lexapro – Day 37

Let today be the start of something new. It’s earth day. We had a beautiful full moon last night & now one this morning. I’ve felt good the past few days. I want to somehow get out of working at the VA, at least full time. I know it doesn’t work for me anymore and I’m just not that interested in the politics of it anymore. Not sure what to do. Wish me luck in discovering whatever it is.

April 27, 2016; 12:49pm

Lexapro – Day 42

What inspired me to write is the walk I just took. I’m walking much faster and with much more gusto. I have been walking since 2003 at lunch nearly every day in rain, snow or shine. I have been walking with gusto for years. I never stopped walking, but I did stop walking with gusto. I still took the stairs, but never with conscious thought anymore. Walking the stairs made me pant. I’m not panting anymore 🙂 I don’t even know when that happened :-). I can’t smile enough about this.

 Everything else in my life stayed the same. It’s my body that is different and calmer. I am enjoying the little things more. Things that used to stress me out matter a bit less, but excitingly enough I’m more excited and engaged with them if that makes any sense.

 What likely stopped me from completely falling to pieces are the good habits that I had already. Like taking the stairs, walking daily. Getting up early to stretch and having a quiet cup of coffee. Eating fairly well. I had lost any and all motivation. I hated doing all those things. But the act of doing them out of habit helped me not to delve into a downward spiral. I’m proud of myself for not giving up and just going through the motions even though I wasn’t there and couldn’t care less about it. It still helped even though I couldn’t feel it at the time.

 All else is ok. I am not loving my job like I never had before. Not since the early days in the Coast Guard as a non-rate have I stared at the clock and mentally counted the hours and minutes until I would get to leave. It’s been a while. It kind of stinks. I liked being engaged more, but I feel a call to do something more. I wrote about my experience with stress in my blog esterinaanderson.com. It was cathartic. I had it posted to facebook. I’m not sure if I already journaled this or not, so I may be repeating myself – lol. Just wanted to catch up. 6 weeks. Feeling good.

May 12, 2016; 12:37pm

Lexapro – Day 57

Happy happy lunch break. It’s been a while since I’ve written about my lex experience regularly these days. I’ve been feeling better. My physical anxiety has not gotten better – only mental. I can think so much more clearly. The biggest thing I did yesterday was actually write to my acting boss & the director to ask to work part-time and if that’s not possible I understand that they will have to replace me. I basically said in a very nice way it’s part-time or I just can’t. I told them about my stress. I told them it sounds like I’m sharing something personal but I’ve shared it publicly. I haven’t heard back yet, but I do have an appointment (requested by the director himself) for today at 2pm. It has to be about my email I imagine.

The strange thing is that I’m not worried about this meeting at all. What is the worst thing that can happen? They fire me and I stay home & relax and garden, take care of Koji, read, cook dinners for the family, pick up kids who need rides. Shop for our food and not have it delivered? Clean my own house & not have a service come?  Like normal people… 

I can think about opening a yoga studio and start an hour bank in my town. I’m still fairly young, I have skills that are worthy, and I have motivation to do good for the world. If I can’t do it at my job where I’d like to, I’ll do it somewhere else. That I know for sure.

In some weird way, I’m really oddly not tied to the outcome as much as I may have once been. Is it the lexapro? The yoga?  My intentions I’m a bit better about setting? I don’t know… but I’m happy and I threw something out there that I can’t take back, and whatever happens it won’t be what I’m doing now… and that makes me SO happy. Hugs & lots of love to all beings.

June 24, 2016; 7:51pm

And as I read back through all of this and previously journaled day 100; I’m in an awesome place. I still don’t know what’s going on with my job! I’m working 3 days a week for now, but don’t know if it will be in my current position or any myriad of possibilities. Who knows? I’m ready for anything! It’s been a while since 3/16 when I journaled “here goes”. No regrets! For anyone ever wondering if it’s worth its, for me… it was.

Thanks for taking the time to read. I’d love to hear your thoughts!

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The connection and beauty of two negative recent events in my life 

Posted on by Esterina Anderson

I have a deeper appreciation for life and moving through my day than I’ve ever had before. Two things happened in the past few months that helped me come to this realization: I started taking an SSRI, and I had outpatient knee surgery. Two very different things for completely different reasons—but in all honesty, both were the result of moving through life too quickly and absentmindedly. Both have completely slowed me down (and fattened me up just a little!), and it’s not all a bad thing.

Back in March, I quite literally lost my marbles and, thankfully, became fully aware that fooling myself into sleeping more, doing more yoga, or meditating more often was not going to be my cure. Truthfully, I was no longer able to do any of those things in a way that felt meaningful. Yoga still felt good physically, but it didn’t slow my thoughts or help me “just be” like it used to. Meditation was a joke. I sat there diligently, but I couldn’t stop the racing in my head.

I did everything I could to keep up with my life. I was (and still am) one of the most organized people I know. Everything was as efficient as possible. No time management tip was going to help—I would read them and think I could write a better article myself. I was stretched thin. There was no room for error. One small miscommunication between family members and the entire chain of well-planned events and pickups would fall apart. No way to live.

A few days before the marble-losing, I went to a routine Thursday morning report-out for senior leadership. As usual, I prepared at the last minute—rushed, but still pulled together something polished and well-coordinated. I walked into the conference room, my employee pulled up the presentation, and I slid my chair under the large dark wooden table.

SLAM.

I hit my right knee hard on one of the table legs.

There were the usual reactions—“Oof,” “I heard that,” “You didn’t need that knee anyway!”—and I shrugged it off and kept going. About 24 hours later, during a meeting with my small team, I noticed my knee hurt. I wondered why as I pushed through the agenda, then remembered hitting it the day before and briefly questioned why it took so long to register. That night at dinner with friends, it hurt more.

The next day, Daren and I went into the city. We were so busy and stressed that I didn’t think about my knee at all. The following morning, seemingly out of nowhere, I had my first long-overdue panic attack. I cried the entire way home. I noticed my knee hurt, but it wasn’t until late the next night—around 9 p.m.—that I realized how swollen and red it had become.

Daren was at hockey practice. I wanted him to look at it, but I fell asleep before he got home.

Long story short, the next few weeks were filled with panic attacks and knee aspirations. The panic worsened quickly. I realized I had to start medication—I had nowhere left to cut back. And have you ever tried to “relax” while in a nonstop adrenaline rush? It doesn’t work.

Once I started the SSRI, I began to notice how often my body was in fight-or-flight, even as my mind started to calm. It was eye-opening. I had been living like this all the time.

I first went to urgent care five days after the injury and was told to rest and monitor it. It stopped hurting—but it didn’t stop swelling. So I ignored the advice. I ran on it, did yoga on it, and didn’t call an orthopedist for three weeks. Who has time for this?

Eventually, I was getting it drained every couple of weeks… then every week… then it started swelling again almost immediately after each visit. At one point, the doctor tried to drain it and nothing came out. A wall had formed. Surgery or live with it.

It’s funny—my knee felt like a physical version of what had been happening mentally for years. Rushing. Ignoring warning signs. Doing the bare minimum to manage something that was clearly deteriorating. Until I hit a wall—mentally first, then physically.

It wasn’t until I had no choice but to deal with it that I realized how much my lifestyle was harming me. My body is all I have—why wasn’t I taking care of it?

After medication adjustments and a few rough weeks, the panic attacks lessened. And then I had surgery.

I’m not claiming I’m a changed woman, but I’ve had some of the most relaxing weeks of my life.

Since March, I’ve rediscovered the library. I’ve been reading a book a week—fiction. Nothing intellectual. Nothing self-improvement related. Just stories.

I’ve started getting bi-weekly massages. Daren and I have been spending more time at home—making the outside of our house beautiful, sipping cocktails, watching fun TV (not documentaries—actual fun TV). I’ve been coloring mandalas. Visiting local shops. Sitting in coffee shops with a matcha latte and a book. Writing for fun.

I’ve even started going back to sleep in the mornings when I don’t have to rush.

That, in itself, feels like a revolution.

My whole life, I woke up ready to go. Even when I was exhausted. There was always something to do. Something waiting. Something urgent. My dad used to bang on our doors and tell us we were “sleeping our lives off.”

Now… I listen to my body. And sometimes it tells me to rest. And I do.

After surgery, I slowed down even more. I slept. I sat outside with my leg up and a book. I noticed things. I wasn’t rushing anywhere.

One morning, I walked slowly down my own street and realized I barely knew it. The houses, the details, the quiet beauty of it all. It had always been there—I just hadn’t.

Later, on the ferry, I looked at my legs—one swollen, one not—and felt grateful just to have them. In the shower, I noticed their strength, their design, how they carry me through life.

I ate breakfast and actually tasted it. I thought about how each raspberry grew—slowly, over time—until it was ready.

I want that.

Slow growth. Presence. Awareness.

We spent the day outside. I modified yoga to meet my body where it was. The trees were alive with spring. Food tasted better. Life felt softer.

Healing—mentally and physically—is happening in small increments. Just like those raspberries.

This morning, I woke up early when Daren left to drive Kieran to work. I started writing this… then stopped.

I opened the blinds. Listened to the birds. Laid back down. Let myself rest.

I want to live like this more.

I’ve already asked to cut back hours at work—and thankfully, the answer was yes.

I don’t want to need medication or injury to slow down. I want to choose it.

We all need to live a little more and “do” a little less. Be present more and absent less.

Every single moment matters.

And I’m finally ready to live in them.

Namaste.

Thanks for taking the time to read. I’d love to hear your thoughts!

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My Mom

Posted on by Esterina Anderson

I wrote this story in October 2006 for my mother’s old boss Sean who was publishing some stories about my mom in the Homeless Voice in Hollywood, FL where she worked.

 

My Mom

By Esterina Messeder

 

Earliest Memory of My Mom

            The earliest memory I have of my mother dates back to when I was three or four years old. I could not have been any older because the memory I have is in a home that we moved out of when I was four. I remember waking up one early morning, and from my bedroom I heard my parents fighting in the kitchen. I heard a plate crack, more screaming, and then my father slamming the door on his way out to where I assume was work. Then I heard the sobs. I waited until I was sure that my father was not coming back in the house, and made my way to the kitchen. Evidence of the argument was left behind by glass on the floor, eggs splattered on the wall, and the kitchen sink running. My mother was sitting on the floor against the left leg of the table with her head in her lap, crying loudly. She did not hear me come in. While I can not recall the exact words that were exchanged, I remember the gist of the conversation. I asked her what was wrong, and she told me she couldn’t stand my father. I asked her why she did not leave him (I had no concept of marriage or divorce), and she said that she never finished school and would not be able to take care of us kids on her own. I remember from that moment on I made a vow to myself to finish school and have the ability to take care of myself so I would not have to depend on a man.

 

Growing Years with Her

            Over the next 15 years or so if I had to sum up my perception of my mother in one word it would be depressed. The image of her standing in the kitchen washing dishes, hunched over, with a cigarette hanging loosely from her lips, barefooted in a knee-length house dress is what comes to mind when I think of my childhood. I cannot say that there weren’t any happy times; I can distinctly remember a few. But only a few. She seemed so helpless against my father, so un-empowered, and so lonely. I could not help but NOT want to be like her when I grew up. I would fantasize about getting a job, getting her an apartment, and taking care of her so she would not have to depend on my father.

 

The Turning Point

            But on July 9, 1993 when I was 17 years old everything changed. It was my brother Frankie’s 13th birthday and he wanted McDonalds for dinner. My parents, Frankie, and I were outside eating dinner in the backyard as a family in the early evening. My father started an argument with me about how if my current boyfriend didn’t give me a ring by the end of the year; I would have to break up with him. I argued that I didn’t want to get married young and that I wanted to go to school and have a job first. Well it seemed like whenever I talked what I thought was sense, my father would get mad because I didn’t agree with him. Sometimes it was just yelling, but more often than not there was violence involved and I would get hit. This particular evening it was the latter. As usual the next few minutes would be a blur of trying to shield myself from blows, my mother yelling in the background, and my brother(s) pulling my father off of me. But this time it was different. Only my brother Frankie was there and he didn’t pull my father off of me… he disappeared into the house. My mother tried unsuccessfully to pull him away while I cowered on the floor and was being beaten with a chair. My father just threw my mother to the ground. Then we heard Frankie’s faint voice from in the house telling us calmly that he had just called the police.

This was a monumental moment. No one had ever called the police before. A male and female officer came to the house, and my mother and I were required to go down to the police station to write a report. As a female officer was asking what happened, my mom was being her usual self by defending my father. It was at this time that I think my mother’s perception of the world changed. This woman looked my mother straight in the eye and said “I don’t want to hear any bullshit, look at your daughter, he toked her”. My mother was silent and I could actually see in her the realization that she had been living with a monster. On the way home that night she said told me that she can’t believe she never realized until now that she is not in control, and she promised me that things would change.

 

The Aftermath

            After that night things did change. I had a restraining order against my father so he was afraid of coming near me. That silly piece of paper really helped me to feel a bit more secure. But still, I could not wait to leave my house. The fighting continued, but I could tell that my mother was stronger and not quite so naïve anymore. As the weeks went by and turned into months, it came closer and closer to the time that I would be graduating high school and having to make a decision about my future. One evening in April 1994, I was in the car with my parents on the way home from seeing an accountant who did our taxes. My father was arguing with me about something or another, and I asked to get out of the car. I was only a mile or two from my house when I walked home alone that night thinking about my future. There was no money for college, I had no idea what I wanted to do with my life, and there was no way I could live home any longer. The logical solution was to join the military. When the thought first came to mind I pushed it away because I could not imagine leaving my mother alone with my father and with no other women in the house. But if I wanted my life to be different, if I wanted money to go to college some day and be able to get a decent job and experience so I could take care of myself and not depend on a man like my mother had to, I would need to take this risk and do something that no one in my family has done before… leave.

 

My Adult Years

            Every day that passed since Frankie’s 13th birthday I watched my mother grow stronger and stronger. She started to have confidence; she was standing up straighter, and smiling more.  When it came time for me to go to boot camp I knew she was sad, but she was so much stronger and happier than she had been just one year earlier. Over the next few years she really made some changes that I was so proud of. She lost some weight, she got dentures because she was so self conscious of her teeth, and most importantly she went back to school. She realized that even she could be happy and it became her mission in life to help others be happy.

But her real happiness did not come until just a few years ago when she picked up her life in the end of 2000 and spontaneously moved to Florida. I was sad to see her go, but I could hear such a difference in her voice. She was a new person. My mother got a job at a homeless shelter down in Florida. Though I never really understood what she was doing, I knew she was happy. She was no longer Cathy the mother, or Cathy the wife, she was Cathy – the person who is making a difference in the lives of people that could not otherwise help themselves. She had a reason to get up in the morning. She had confidence. And I can’t say it enough, but I know that she was a lot happier than she had ever been when she lived back home in New York.

Last summer in 2005 she came up to NY and CT where I live now to visit. While I was driving down to LaGuardia airport to pick her up, I was SO excited to see her. I was imagining her getting on the plane and being just as excited to see me. My husband was calling me every 15 minutes or so from home tracking her plane to let me know where it was in the sky. With every passing minute my anticipation grew. I was so nervous and excited. When her flight let off I watched all the passengers coming toward the baggage claim area. I was enthusiastically looking for her when a lady walked up to me and said “Esterina it’s so good to see you”… it was her! And she looked so different! So different. She was older, calmer, wiser, and far more beautiful than I ever remembered her. I almost didn’t believe this person in front of me was actually my mother. As we walked toward the baggage claim area and she was talking, her voice sounded the same and I realized how much she changed. I was in a complete daze. It took about 10 minutes or so for me to calm down from the excitement. I couldn’t wait to spend the weekend with her, and after she grabbed her suitcase we made our way out to the parking lot to my car. We were only walking a few minutes when she asked me to slow down. She was holding her side and told me that her shoulder hurt. At that moment my excitement disappeared. I had an uneasy feeling in my stomach, but I could not put my finger on it.

Over the next few days my family and I had a wonderful visit with her. First she came back to CT with me, and then we drove her down to New York where we visited with my brothers. She told us stories about all that she was doing in Florida and Venezuela, and all the plans she had, and people she was helping. I didn’t understand most of it, but I was proud of her and the life that she made for herself. But her shoulder hurt, and she had a nasty smoker’s cough, despite the fact that she’d quit smoking a few years earlier. I pushed the thoughts of these odd health things out of my mind, and I made a vow to myself that we should have her come up to visit every year.

 

The Cancer

            It was the weekend when hurricane Wilma whipped into Florida last October. My husband, kids, and I were spending the weekend at my brother Frankie’s house carving pumpkins with our kids, and celebrating my brother Mario’s birthday a few days early. We ate, drank, and played the music loud. We never heard a phone ringing that evening. Mario went home on Saturday night and we all went to bed. Sunday morning Mario called really early to say that our grandmother had been calling us all night. I checked my messages, and sure enough she had. He said that my grandmother said something is wrong, and to please call my mother just to tell her we love her. Well, Mario called the homeless shelter where my mom was staying and talked to her boss Sean. Sean told him that the day before my mother went to the hospital and there was a mass on her lung. She got nervous, checked herself out of the hospital, and then got on the next flight out of Florida to Venezuela. After Mario called me to tell me the conversation he had with Sean, I hung up the phone and stood speechless in Frankie’s kitchen. The kids were running around, and my husband, Frankie, and Frankie’s girlfriend were all happily chatting away while making breakfast. When they realized that I had hung up the phone and was just standing there, all activity in the house seemed to come to a halt. They were all looking at me… waiting for me to say something, and I blurted out “Mom is dying of lung cancer”.

It was a stupid thing to say at the time because we had no idea what it was. There was just a mass on the lung. It could have been pneumonia. It could have been something else. It could have been a much more mild stage of cancer. But within the next few weeks after all different types of tests in the U.S. and Venezuela we learned that she did indeed have lung cancer. It was stage IV, small-cell lung cancer. These words meant nothing to me until I looked them up on the Internet and learned that the average life expectancy of someone with this type of cancer was only a few months. I was beside myself. I cried that whole first night, and made plans within in the next day or two to visit her by week’s end.

When I went down to Florida I got to see the life my mom had been living. I met all her friends, co-workers, and Sean. She was happy and surrounded by people who loved her. Though I would have liked her to be closer to the family at this crucial time, I saw that she was happy in Florida and thought there might be too many bad memories associated with staying in the New York area. The second day I was there we took a nap in the afternoon. My grandmother was also visiting and was ironing in the next room. My mother told me right after she woke up that she had a dream that my daughter was there with us, and there were 4 generations of women together in the same room.

I visited her quite a bit over the next few months and each time I learned a little bit more about her life. I learned about her experiences as a child growing up. I learned about her father (my grandfather) that I never knew. I learned about what she had been doing in Florida and the close relationship she developed with God. I got much closer to her with every visit, but each time I went down she looked more and more sick. The last time I visited in May, I took the kids down there with me on Mother’s Day weekend. I knew my grandmother and aunt were going to be there and I wanted to make her dream actually come true where there were four generations of women in the same room. I got to her apartment with the kids while she was out at the doctor. When she walked in she was so surprised! And so was I, but not in a good way. She had lost so much weight since the last time I’d seen her, and she had a cane. I acted normal, but inside I knew she wasn’t really getting better. Her right leg was in excruciating pain. The night before Mother’s Day we all went shopping and cooked a fabulous dinner. Everyone contributed a food item to the dinner. We pushed the dining room table to the middle of the room and sat around it for what would be our last big meal like this together (though we didn’t know it at the time). It was such a wonderful, relaxing evening. The next morning on Mother’s Day my mom had a hard time getting out of the bed. I took her to the emergency room where she was checked into the hospital. I didn’t know that when she walked into the ER that day with my kids and me, that it would be the last time she ever walked on her own again.

 

Last Trip back Home

            Well to make what could be a long story short, she’d spent a lot of time in the hospital over the next few months. Sometime in mid-July her oncologist told my aunt that there was nothing more that he could do. He expected her to last only a few more weeks without treatment. I think all of our hearts broke that day. I was afraid to call my mother. I didn’t know what to say, or how to act. I was secretly relieved every time I called and no one picked up the phone. My mother called my grandmother the next day and asked her if she could “come home”. It was what we all wanted. Sean worked really hard to make her wish come true (God Bless him). I had no idea how bad off she was. When I heard she was too weak to travel on a commercial flight, and that it was dangerous to move her, I have to say that I was shocked that she deteriorated so quickly. After a LOT of cajoling, an air ambulance flight for her to come up to New Jersey was finally scheduled. I was SO happy. But I was nervous for her. It was only a year after the last time she came up this way to us. I was just as happy, but for completely different reasons. Again I imagined her getting on the plane and being just as excited to see us. This was going to be the last time I would be this excited to see my mother.

There were a few good days before her body started to shut down. She had a few good meals and had a few good laughs with us. She got here not a moment too soon. In the last few days we kept vigil by her bedside in my grandmother’s apartment. There was a lot of time to think about her and her life. I feel sad that such a large portion of it was spent miserable, but I am proud of her for turning it around and helping other people. With hospice’s encouragement I talked to her a lot even when she couldn’t talk back. I was surprised with my children’s ease around her. My 9-year old son was holding her hand, talking to her and kissing her. In her last few days and hours I told her how proud I was of her. I told her how she’d shaped my life and taught me through her life that being able to take care of yourself and not depend on anyone else is important. I wondered what she was thinking, what she was remembering. Did she remember the bad times? The day I saw her crying in the kitchen when I was three or four years old? Was she remembering the people she’d helped? I wanted her to know that I learned so much from her. Even when she was lying there on her last day she was teaching me that life is too short to not enjoy it, to hold grudges, or spend too much time over thinking things. I only hope that she is as proud of me right now as I am of her.
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This picture resembles mostly how I remember my mom looking from my childhood.

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These 3 pictures were taken fourth of July weekend in the summer of 2005 before we found out she was sick. She did have cancer at this time. We just didn’t know it. It was the last carefree time we spent with her.

 

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She passed away right before midnight on August 6th 2006, but hospice didn’t arrive until after mid-night so the official date is listed as 8/7/06. We spread her ashes on what would have been her 50th birthday on October 25th that same year. We went to Steeplechase Pier in Brooklyn where she grew up and raised us kids until I was almost a teenager.

 

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